Nicholas Coke was born with a rare genetic disease a few days before Christmas. The disease left him with only a brain stem and no brain but unlike others born with the disease who die within hours Coke has survived to turn one.
As happy as his family is at each new accomplishment, they are in constant worry of the inevitable day when he will pass away.













Comments: 23
He sure is a precious little Boy!
The child is dead. Autonomic functions are not life, sorry.
I am a Dad, and hope I would do better in this situation.
This is sad, but futile.
The brain stem controls breathing and heart rate. There is a purpose for this childs life, all those around him know this. We are just bystanders with no real investment in this situation. We should wish them well and let that be all.