Avery Canahuati may be only five months old, but her short life has already affected the lives of so many others. How? Her parents Laura and Mike Canahuati are keeping a blog to discuss and document her life living with Spinal Muscular Atrophy, a condition that they have been told will take their daughter's life before she reaches the age of two.
Though the news of little Avery's condition was devastating, her parents are choosing to celebrate her life while they can, keeping a blog known as Avery's Bucket List where they document the many ways in which they are able to celebrate the milestones that she can reach, rather than focusing on the ones that her condition will inevitably rob them of. While the reality of the situation is heartbreaking, the way in which they are choosing to face her condition is life-affirming, and inspiring so many others while raising awareness of Spinal Muscular Atrophy, a previously relatively unknown condition.
Avery Canahuati's dad, Mike, is the writer of the blog, though it's written from her perspective.
"I have a lot of living to do in just a little bit of time. In everything I do, the two most important things are that I'm spending time with my mommy & daddy, while at the same time spreading awareness for SMA."
It seems as though they're successful on both fronts, as Avery Canahuati has checked off several items so far on her bucket list, including tasting solid foods, flying a kite, blowing bubbles, visiting a college, and having her first (fake) driver's license made! She's even had her first "crush" and kiss, and with another baby with SMA to boot!
"His name is Cooper and he's 19 months old (I just love older men, they're so much more mature than 3 & 4 month olds). My mommy and daddy said this might be the best kiss since Ryan Gosling & Rachel McAdams in The Notebook."
Clearly her parents are keeping a positive outlook and a sense of humor about their situation!
What do you think of the Canahuati's response to Avery's condition? Did you previously know of Spinal Muscular Atrophy?
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